Shop For A Cure

Discovering Hope through our new "Wear Purpose Apparel Line" Our "Wear Purpose Line" allows us to develop and build fundraising opportunities for Batten Disease Research! Join us in the fight against Batten Disease and let your fashion choices speak volumes. Shop now and be a part of the movement to create a brighter future for those affected by this challenging condition. Together, we can make a difference—one stylish piece at a time.

Did You Know:

Batten disease, also known as neuronal ceroid lipofuscinosis (NCL), is a rare and fatal genetic disorder that primarily affects the nervous system. It is characterized by the progressive loss of mental and motor skills, seizures, visual impairment, and premature death. By making a donation today you can help create research opportunities that could save a child's life!

Become A Sponsor

We're on the lookout for like-minded organizations eager to make a meaningful impact. By joining us as a sponsor, you not only unlock fantastic promotional benefits for your business but also play a vital role in sustaining our medical research and fostering partnerships crucial for the progress of our trials. Together, let's make a difference and drive positive change.

Did You Know:

Thousands of children every year are diagnosed with Batten Disease at birth. Without any cure, children affected by Batten disease are only given a life expectancy to their early teens. Over 14,000 kids battle with Batten every year.

Our Fight Is Known Worldwide: Shedding Light on Batten Disease

In the shadows of rare diseases, Batten Disease often remains unheard of by many. With a mission to raise awareness globally, we embark on a journey to illuminate the realities of Batten Disease—a rare and devastating neurodegenerative disorder. Join us in our advocacy as we strive to make our fight known worldwide, fostering understanding, empathy, and support for those affected by this often-overlooked condition. Together, let's bring Batten Disease out of the shadows and into the spotlight of awareness